Wellington, Feb 2 NZPA – The New Zealand Organisation for Rare Disorders (NZORD) is promoting 140 rare disease support groups in the lead up to its national awareness day.
NZORD aimed to give small groups with few resources an opportunity to raise awareness about their particular cause, executive director John Forman said.
“We have provided flyers, promotional material, and a ‘how to’ guide on our website so rare disease groups can easily set up fundraisers in workplaces, schools or clubs,” he said.
About 8 percent of the population suffer from a rare disease.
In the second annual New Zealand Rare Disease Day “Jeans for Genes”, on February 28, participants show their support by wearing denim and making a donation to a charity of their choice.